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12 Comments
antsays...*ftw *teens
siftbotsays...Adding video to channels (Ftw, Teens) - requested by ant.
siftbotsays...Moving this video to oritteropo's personal queue. It failed to receive enough votes to get sifted up to the front page within 2 days.
eric3579says...*promote
siftbotsays...Promoting this video and sending it back into the queue for one more try; last queued - promote requested by eric3579.
PlayhousePalssays...*quality humanity. Sadly too rare in this life and time.
siftbotsays...Boosting this quality contribution up in the Hot Listing - declared quality by PlayhousePals.
JiggaJonsonsays...I cried. Idk if I ever said anything here, but I've been only on occasionally because I had a daughter born with a rare genetic disorder that my wife and I both carried recessively.
It's called NPC which is an acronym for Niemann-Pick Disease Type C (it also makes it annoyingly difficult to search for because I get all kinds of results about non player characters).
http://nnpdf.org/overview/#NPC
The disease itself is fairly horrifying. That sounds like strong language, but click on this link to see the progression of the disease if you too want to cry: http://nnpdf.org/the-disease/the-progression-of-niemann-pick-disease/
Fortunately, we're part of an experiment that is treating people with a very promising success rate for halting the progression of symptoms.
*promote
siftbotsays...Promoting this video back to the front page; last published Saturday, July 15th, 2017 5:04am PDT - promote requested by JiggaJonson.
JiggaJonsonsays...Just a follow up:
The research and trials they are doing for NPC are a testament to modern medicine and science. The doctor who is doing the trial with us dramatically changed the course of my family's life. Click here if you want to feel better about all that: https://fightnpc.com/en/drug_trials
Just LOOK at what a difference it makes in other mammals, and they already see very similar results in humans they are testing on. They've managed to nearly halt the progression of symptoms in most patients. :-D
See also: http://www.fiercepharma.com/animal-health/cats-and-febreze-may-hold-key-to-treating-devastating-niemann-pick-disease
JiggaJonsonsays...*promote
siftbotsays...Promoting this video back to the front page; last published Saturday, July 15th, 2017 5:04am PDT - promote requested by JiggaJonson.
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