JiggaJonson

Member Profile

A little about me...
Spend 40 minutes of your life learning how to live via sartre http://video.google.com/videoplay?docid=5997040150951355473 if you dont...well.... http://30.media.tumblr.com/tumblr_li94xm5A9W1qcu0bjo1_500.gif

Member Since: June 11, 2008
Last Power Points used: January 12, 2018
Available: now
Power Points at Recharge: 1   Get More Power Points Now!

Comments to JiggaJonson

siftbot says...

Congratulations! Your dedication to finding diamonds in the rough and pushing videos of other members to success has earned you your "Assister" Level 20 Badge!

JiggaJonson says...

I was in tears for months when I saw that, but I had to keep it together and keep raising my little girl. So I'd be doing finger paints with a happy face and then disappear into the bathroom and weep for a bit. It was a pretty dark time in my life.

The research and trials they are doing are a testament to modern medicine and science though. The doctor who is doing the trial with us dramatically changed the course of my family's life. Click here if you want to feel better about all that: https://fightnpc.com/en/drug_trials

Just LOOK at what a difference it makes in other mammals, and they already see very similar results in humans they are testing on. They've managed to nearly halt the progression of symptoms in most patients.

oritteropo said:

Thanks for the promote. I'm not sure if I really wanted to click the link though, it's exactly as horrifying as you promised

oritteropo says...

Thanks for the promote. I'm not sure if I really wanted to click the link though, it's exactly as horrifying as you promised

JiggaJonson said:

I cried. Idk if I ever said anything here, but I've been only on occasionally because I had a daughter born with a rare genetic disorder that my wife and I both carried recessively.

It's called NPC which is an acronym for Niemann-Pick Disease Type C (it also makes it annoyingly difficult to search for because I get all kinds of results about non player characters).
http://nnpdf.org/overview/#NPC

The disease itself is fairly horrifying. That sounds like strong language, but click on this link to see the progression of the disease if you too want to cry: http://nnpdf.org/the-disease/the-progression-of-niemann-pick-disease/

Fortunately, we're part of an experiment that is treating people with a very promising success rate for halting the progression of symptoms.

*promote

siftbot says...

Happy anniversary! Today marks year number 9 since you first became a Sifter and the community is better for having you. Thanks for your contributions!


siftbot says...

Congratulations! Your dedication to finding diamonds in the rough and pushing videos of other members to success has earned you your "Assister" Level 19 Badge!

siftbot says...

Congratulations! Your comment on 29 years old and hearing myself for the 1st time! has just received enough votes from the community to earn you 1 Power Point. Thank you for your quality contribution to VideoSift.

siftbot says...

Congratulations! Your dedication to finding diamonds in the rough and pushing videos of other members to success has earned you your "Assister" Level 18 Badge!

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