This kid tried to quit band, teacher had other plans

YouTube description:

When an illness started taking away a student's ability to play the drums, his band director made different plans. Find out what she did to make sure the music didn't stop for this dedicated student.

(H/T @eric3579)
JiggaJonsonsays...

I cried. Idk if I ever said anything here, but I've been only on occasionally because I had a daughter born with a rare genetic disorder that my wife and I both carried recessively.

It's called NPC which is an acronym for Niemann-Pick Disease Type C (it also makes it annoyingly difficult to search for because I get all kinds of results about non player characters).
http://nnpdf.org/overview/#NPC

The disease itself is fairly horrifying. That sounds like strong language, but click on this link to see the progression of the disease if you too want to cry: http://nnpdf.org/the-disease/the-progression-of-niemann-pick-disease/

Fortunately, we're part of an experiment that is treating people with a very promising success rate for halting the progression of symptoms.

*promote

JiggaJonsonsays...

Just a follow up:

The research and trials they are doing for NPC are a testament to modern medicine and science. The doctor who is doing the trial with us dramatically changed the course of my family's life. Click here if you want to feel better about all that: https://fightnpc.com/en/drug_trials

Just LOOK at what a difference it makes in other mammals, and they already see very similar results in humans they are testing on. They've managed to nearly halt the progression of symptoms in most patients. :-D

See also: http://www.fiercepharma.com/animal-health/cats-and-febreze-may-hold-key-to-treating-devastating-niemann-pick-disease

Send this Article to a Friend



Separate multiple emails with a comma (,); limit 5 recipients






Your email has been sent successfully!

Manage this Video in Your Playlists




notify when someone comments
X

This website uses cookies.

This website uses cookies to improve user experience. By using this website you consent to all cookies in accordance with our Privacy Policy.

I agree
  
Learn More