Shiloh Pepin is a brave little girl who has a rare condition called 'sirenomelia'. Her courage is inspiring, and watching this made me cry.
WikiPedia: 'Sirenomelia, alternatively known as Mermaid Syndrome is a very rare congenital deformity in which the legs are fused together, giving the appearance of a mermaid.
This condition is found in approximately one out of every 100,000 live births (about as rare as conjoined twins) and is usually fatal within a day or two of birth because of complications associated with abnormal kidney and bladder development and function. It results from a failure of normal vascular supply from the lower aorta in utero.
Shiloh Pepin was born in Kennebunkport, Maine in August, 1999, with her lower extremities fused, a missing bladder, uterus, colon and vagina, with only one partial kidney and one ovary. Her parents initially anticipated she could expect only a few months of life. An initial kidney transplant at 4 months of age, lasted a number of years, and in 2007 a second kidney transplant was successful. She attends Consolidated Elementary School. Shiloh is the only one of the three survivors of Sirenomelia without surgery for separation of the conjoined legs.'
10 Comments
Farhad2000says...As someone who comes from a large medical family I believe births like these should simply be terminated. It is a life of utter misery and pain for the individual suffering it.
The partial kidney, missing bladder and fused extremities will mean this child will have to undergo operation after operation to simply lead a nominal life that we take for granted.
This is a fact alot of people simply refuse to face overcome with compassion that we can 'fix' defective births.
rottenseedsays...>> ^Farhad2000:
As someone who comes from a large medical family I believe births like these should simply be terminated. It is a life of utter misery and pain for the individual suffering it.
The partial kidney, missing bladder and fused extremities will mean this child will have to undergo operation after operation to simply lead a nominal life that we take for granted.
This is a fact alot of people simply refuse to face overcome with compassion that we can 'fix' defective births.
So, you think that somebody born with this condition doesn't have the right to exist? Fight the good fight like the rest of us? Yea, she's probably going to have a tougher time, but she still has capabilities. I mean if Steven Hawking's condition were determined while he was still in his mother's womb, should we have aborted him? People learn to cope with the cards they're dealt and we should leave it to them to make the choice to live or die.
deedub81says...Could you say that to the girls face?
"I think you should have been terminated before you were born."
What an ignoramous. That comment made me sick!! Sick, sick, sick! Somebody needs to fix your head.
>> ^Farhad2000:
As someone who comes from a large medical family I believe births like these should simply be terminated. It is a life of utter misery and pain for the individual suffering it.
The partial kidney, missing bladder and fused extremities will mean this child will have to undergo operation after operation to simply lead a nominal life that we take for granted.
This is a fact alot of people simply refuse to face overcome with compassion that we can 'fix' defective births.
rougysays...>> ^deedub81:
Could you say that to the girls face?
"I think you should have been terminated before you were born."
Deedub, I think your heart is in the right place, but would you choose to live like that?
She's here, she's now, but would you live her life?
Her chances for prom dates, marriage, kisses from hot suiters?
Next to zero. Always the outcast. The freak.
Stop it before it starts, and let her soul rebound to a better place.
Farhad2000says...So, you think that somebody born with this condition doesn't have the right to exist?
I never said that. I said that defective births are usually still born anyway, or are in cases aborted when the birth becomes risky to the mother.
Fight the good fight? I don't think that really applies, people born with disabilities have no choice but to struggle anyway. You are not giving them a choice, obviously they will strive to survive. My comment was not based around their inability to do this, human psychology more powerful then physical disability.
What am talking about is creating hope through one painful medical procedure to the another. I seen operations like this, its not a fight its painful as fuck.
Steven Hawking's condition were determined while he was still in his mother's womb
Stephen Hawking has ALS, the cause of which no one knows. No substantial hereditary link has been found. So your point doesn't apply here. I mean you could be killing hundreds of potential Einsteins masturbating, that is still not a good way of refuting this. This is the same argument pro-Choice people have.
People learn to cope with the cards they're dealt and we should leave it to them to make the choice to live or die.
I don't think its a choice when you have a medical community intervene on a birth that would lead to death a few decades ago.
I don't know why you are painting me out as some morally depraved bastard, I never said lets just kill her and be done with it, of course the story of her life is touching.
But you are taking one girl aptly called the mermaid girl and pulling out a morally high position out of it. She has the means to progress through this, a nurturing home to help through this. But you aren't accounting for the hundred of thousands of other defective births, I worked with mentally disabled and deformed births in Africa, no one wanted them, there is no socialized system to take of them, it was horrifying to see them to live in conditions of no love.
They were suffering. I didn't like seeing that, I think it would have been better if there were allowed to perish at birth. This girl has the means and support to make it through, most don't.
But I believe human life is nothing special and am frankly quite cold about it, I care about my fellow man of course but being alive is not an achievement or miracle its simply biology and evolution. That's why I never understand the sadness people feel when having a still born child, naming them and then having funerals, he was still born for a reason, his life experience is as peaceful as you can have. Its best to move on and have another child and do everything possible to have a safe birth.
gwiz665says...She should have been terminated in the womb long ago, but now that she's here, there's obviously no other thing to do than help her live and let her live her life.
To say it to her face is not really the issue. We have built-in social mechanisms that make it hard to do things like that - "You should be dead" is about one of the worst things you can say directly to a person - but that doesn't change the fact that her condition makes her life considerably shorter, harder and costly for everyone around her.
Physical disabilities ought to be a thing of the past, since we can stop them before they happen, but people are too caught up in the "miracle of life" to see it.
And she's not brave for being alive, she's not brave for being deformed. People don't have inherent courage when they are young and sick.
gwiz665says...*eia evolution inaction
siftbotsays...Adding video to channels (Eia) - requested by gwiz665.
jonnysays...[redacted drunken rant]
jonnysays...[redacted drunken rant]
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