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lucybmartinez3

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I also have narcolepsy, but without the cataplexy, for which I am most grateful!  I also had blephorospasms, which is when my eyes close unexpectedly, without the sleep.  It was quite frightening, as it happened a number of times while I was driving.  I saw a neurologist soon after these symptoms began, and it has been controlled quite well, with Botox injections around the outer edges of my eyes.  This is very different from the Botox which is used on wrinkles.  Within a month or so, those disappeared, although my eyelids are often heavy and I find it more comfortable to keep them closed, whenever possible.  The narcolepsy is still with me: I take a medication called Provigil, when certainly helps.  But I have a hard time making myself go to bed, when I begin feeling sleepy.   I often fall asleep at my desk top computer with my head falling on the keyboard, leaving the strangest comments, which I enjoy posting, much to people's confusion.  I have also often fallen out of my chair, and been rudely awakened by the sudden stop.  Fortunately, I never been seriously hurt, and that hasn't happened for many months.  I'm an older woman of 79, with osteoporosis, but I haven't broken anything in these unexpected naps, as I call them.  The young woman in the video, who is a dancer and making a teaching video, it seems, is a much worse situation that I, for which I am grateful.  I have here seen this site before, and I hope I'm not intruding...just thought folks might like to hear another perspective.

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